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World Journal of Plastic Surgery، جلد ۱۰، شماره ۳، صفحات ۹۹-۱۰۳
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عنوان انگلیسی Epidermolysis Bullosa Registry Data in Iran
چکیده انگلیسی مقاله ABSTRACT BACKGROUND In many countries, there is no registry system to record data for Epidermolysis Bullosa patients. However, the first steps for establishing a registry system have been taken in Iran. Therefore, we decided to publish it for the first time. METHODS This was a prospective cross-sectional study. Data was obtained from 538 patients consecutively enrolled in the Iranian Epidermolysis Bullosa Registry, using a detailed instrument created by burn research center of Iran University of Medical Sciences, Tehran, Iran from Jan 2017 to Sep 2017. Patients' information such as age, gender, address, educational status, parents' family relationship and pathology result were recorded. Then a physician examined patients focusing on gastrointestinal system, teeth, ophthalmologic disorders, psychological problems and contracture of the upper and lower limbs and any other complaint. Data entered SPSS ver.19 and analyzed using ANOVA and LSD tests. RESULTS Overall, 538 EB patients were registered in Iran (6.72 patient in 100.000 person) with an approximately equal ratio between males and females. Among 103 patients whose disease type was determined by a pathologist, 78 patients (75.7%) had dystrophic type, 13 (12.6%) junctional, 9 (8.7%) simplex and 3 (2.9%) kindler type. The most common complaint of patients was dysphagia followed by tooth damage. CONCLUSION We stablished a data registry for EB patients for the first time in Iran. The frequency of EB in Iran is less than many other countries. However, data completion is to be done to include all patients as possible.
کلیدواژه‌های انگلیسی مقاله Epidermolysis bullosa, Epidemiology, Iran
نویسندگان مقاله | Siamak Farokhforghani
1- Burn Research Center, Iran University of Medical Sciences, Tehran, Iran.


| Mohammad Javad Fatemi
1- Burn Research Center, Iran University of Medical Sciences, Tehran, Iran.


| Parinaz Ghanooni
1- Burn Research Center, Iran University of Medical Sciences, Tehran, Iran.


| Faraz Asadpour
1- Burn Research Center, Iran University of Medical Sciences, Tehran, Iran.


| Shirin Araghi
2- Hazrat Fatemeh Hospital, Iran University of Medical Sciences, Tehran, Iran.


| Afshin Nouri
2- Hazrat Fatemeh Hospital, Iran University of Medical Sciences, Tehran, Iran.
نشانی اینترنتی http://wjps.ir/browse.php?a_code=A-10-445-2&slc_lang=en&sid=1
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