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Iranian Journal of Blood and Cancer، جلد ۸، شماره ۴، صفحات ۱۰۸-۱۱۱
عنوان فارسی
چکیده فارسی مقاله
کلیدواژه‌های فارسی مقاله دریافت کنندگان خون، ، بتا تالاسمی ماژور، کیفیت زندگی
عنوان انگلیسی Health-Related Quality of Life in β Thalassemia Major Children in North of Iran
چکیده انگلیسی مقاله Background: Advances in treatment of thalassemia major have improved the life expectancy of the patients and therefore their quality of life as other chronic diseases. This study was conducted to assess health- related quality of life in these patients in Guilan province. Methods: In a cross-sectional study, thirty-one children, aged 8-12 years, with β-thalassemia major were interviewed in Guilan, northern Iran, from January to March 2016. Source of data were health centers of the province and its satellite centers, blood transfusion organizations, general hospitals and private clinics. Health-related quality of life was assessed by using PedsQL questionnaire. The Questionnaire was completed at baseline by all patients and their parents. T and Chi-square tests were used as appropriated. Results: Of the 31 children, 58.1% were girls. Total summary score in children was 75.9±20.1. Physical, Emotional, social, school and psychosocial functioning scores were 70.6±24, 73.3±22.9, 85.9±21, 74.1±21.5, 77.7±19.7, respectively. None of the children underwent splenectomy. Sex, Serum ferritin and hemoglobin levels did not show any association with quality of life in this study. Conclusion: Although quality of life in these patients was acceptable, HRQOL showed lower scores in comparison to the healthy population. It seems more social and familial support for increasing the quality of life of these children is surely needed.
کلیدواژه‌های انگلیسی مقاله
نویسندگان مقاله عباس جعفری شکیب | abbas jafari shakib
p.o box 3381 rasht, iran


علی داودی kiakalaye | ali davoudi kiakalaye
guilan blood transfusion organization,azadegan st, rasht, iran

سازمان اصلی تایید شده: سازمان انتقال خون ایران (Blood transfusion research center)

aa پورفتح الله | aa pour fathollah
iranian blood transfusion organization, tehran, iran

سازمان اصلی تایید شده: سازمان انتقال خون ایران (Blood transfusion research center)

رضا جعفری شکیب | reza jafari shakib
department of immunology, guilan university of medical sciences, rasht, iran

سازمان اصلی تایید شده: دانشگاه علوم پزشکی گیلان (Guilan university of medical sciences)

زهرا محتشم امیری | zahra mohtasham amiri
department of community and preventive medicine, guilan university of medical sciences, rasht, iran

سازمان اصلی تایید شده: دانشگاه علوم پزشکی گیلان (Guilan university of medical sciences)

نشانی اینترنتی http://ijbc.ir/browse.php?a_code=A-10-277-1&slc_lang=en&sid=en
فایل مقاله اشکال در دسترسی به فایل - ./files/site1/rds_journals/98/article-98-315248.pdf
کد مقاله (doi)
زبان مقاله منتشر شده en
موضوعات مقاله منتشر شده |
نوع مقاله منتشر شده 1
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