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Iranian Journal of Blood and Cancer، جلد ۵، شماره ۲، صفحات ۵۷-۶۰
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عنوان انگلیسی The effect of on demand and prophylactic therapeutic methods on quality of life among hemophilic children
چکیده انگلیسی مقاله Background: Treating a chronic disease such as hemophilia is to improve the symptoms and quality of life (QOL) of the patients. This study aimed to study the quality of life among hemophilic children and compare the quality of life between patients receiving prophylactic or on demand treatments. Materials and Methods: In this descriptive-comparative study, we enrolled 60 patients from three main hemophilia care centers in Tehran. All patients were 4-7 year old. Half of the patients were receiving prophylactic and half were receiving on-demand treatment. The assessment tool was Heamo-QoL questionnaire which assesses the quality of life in different dimensions (physical, feeling, family, friends, others, attitude, treatment and behavior). In this instrument, higher points correspond to lower quality of life. The mean quality of life in each dimension and also the total score were determined. Quality of life was compared between prophylactic and on demand treatments. Results: The mean quality of life in groups receiving prophylactic and on-demand treatments were 2.6±0.3 and 3.33±0.4 respectively (P< 0.001). All dimensions except “treatment” and “feeling” were different between groups. The highest impairments among patients, regardless of their treatment regimen, were in family and physical dimensions. Conclusion: It is necessary to pay more attention to prophylactic treatment in hemophilic children as it seems to provide a higher quality of life among patients. Keywords: Hemophilia, quality of life, prophylactic, treatment, on demand, Heamo-QoL.
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نویسندگان مقاله عشقی p | eshghi p
pediatric congenital hematologic disorders research center, shahid beheshti university of medical sciences, tehran, ira

سازمان اصلی تایید شده: دانشگاه علوم پزشکی شهید بهشتی (Shahid beheshti university of medical sciences)

خانعلی l | khanali l
nursing department, shahid beheshti university of medical science

سازمان اصلی تایید شده: دانشگاه شهید بهشتی (Shahid beheshti university)

عابدسعیدی j | abed saeedi j
psychology department, shahid beheshti university of medical sciences, tehran, iran.

سازمان اصلی تایید شده: دانشگاه علوم پزشکی شهید بهشتی (Shahid beheshti university of medical sciences)

فراهانی h | farahani h
psychology department, shahid beheshti university of medical sciences, tehran, iran

سازمان اصلی تایید شده: دانشگاه علوم پزشکی شهید بهشتی (Shahid beheshti university of medical sciences)

عبداله گرجی f | abdolah gorgi f
clinical research unit, mofid children’s hospital, tehran, iran


حبیب پناه b | habib panah b
pediatric congenital hematologic disorders research center, shahid beheshti university of medical sciences, tehran, ira

سازمان اصلی تایید شده: دانشگاه علوم پزشکی شهید بهشتی (Shahid beheshti university of medical sciences)

تهرانی طریقت s | tehrani tarighat s
iranian hemophilia comprehensive care center


علوی s | alavi s
pediatric congenital hematologic disorders research center, shahid beheshti university of medical sciences, tehran, ira

سازمان اصلی تایید شده: دانشگاه علوم پزشکی شهید بهشتی (Shahid beheshti university of medical sciences)

تسلیمی s | taslimi s
pediatric congenital hematologic disorders research center, shahid beheshti university of medical sciences, tehran, ira

سازمان اصلی تایید شده: دانشگاه علوم پزشکی شهید بهشتی (Shahid beheshti university of medical sciences)

نشانی اینترنتی http://www.ijbc.ir/browse.php?a_code=A-10-1-37&slc_lang=en&sid=en
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