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Medical Journal of Islamic Republic of Iran، جلد ۳۵، شماره ۱، صفحات ۱۰۹۰-۱۰۹۵
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چکیده فارسی مقاله
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عنوان انگلیسی Economic Burden of Epidermolysis Bullosa Disease in Iran
چکیده انگلیسی مقاله Background: Epidermolysis bullosa (EB) is prevalent in Iran and incurs direct and indirect costs on the health care system and the patient.Therefore, this study was conducted to estimate the economic burden of this disease in Iran.    Methods: This study includes all patients with EB disease who had been referred to the medical centers of Iran in 2019-2020 for treatment of their disease, especially Hazrat Fatimah Hospital and their medical records are available in Iran EB Patients Association (IEBPA). In estimating the economic burden of diseases and costing studies, we calculated the average direct and indirect costs for a patient and used it to estimate the costs of the patient population. In this study, a prevalence approach was used to calculate the economic burden of this disease. For this purpose, the existing cases of the disease in 2019-2020 were calculated. The data collected from the questionnaires that were completed through interviews with patients as well as the data extracted from the review of their files were entered into Excel software and analyzed.    Results: The total direct medical costs of direct non-medical and indirect are equal to 7.319.428.315 & 5.390.440.775 and 45.875.654.514 Rials respectively, and the total economic burden of the disease and the average of each patient is 58.585.514.604 and 155.890.789 respectively.    Conclusion: High indirect costs, especially informal care, represent the socio-economic burden of this disease and constitute more than half of the total indirect costs. Therefore, the obvious gap and hidden social costs of this disease are related to health policymakers, especially when they want to study the impact of this disease on different income classes of families.  
کلیدواژه‌های انگلیسی مقاله Economic Burden, Epidermolysis Bullosa, EB, Iran
نویسندگان مقاله | Siamak Farokh Forghani
Burn Research Center, Iran University of Medical Sciences, Tehran, Iran


| Reza Jahangiri
Health Management and Economics Research Center, Iran University of Medical Sciences, Tehran, Iran


| Farzaneh Ghasemi
Department of Health Economics, School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran


| Reza Shirani
Department of Public Health Economics, School of Public Health, Shahrekord University of Medical Sciences, Shahrekord, Iran


| Hosein Bagheri
School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran


| Razieh Mahmoodi
Department of Health Economics, School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran


| Saeed Bagheri Faradonbeh
Health Management and Economics Research Center, Iran University of Medical Sciences, Tehran, Iran
نشانی اینترنتی http://mjiri.iums.ac.ir/browse.php?a_code=A-10-3266-6&slc_lang=en&sid=1
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کد مقاله (doi)
زبان مقاله منتشر شده en
موضوعات مقاله منتشر شده Health Management and Economics
نوع مقاله منتشر شده Original Research
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